Pille Pruulmann-Vengerfeldt is professor in media and communication studies, but she is also the mother of a child with CHARGE syndrome. In her current work, she researches how parents use Facebook groups to support children with disabilities.
In this Medea Vox episode, we discuss digital parenting and how social media platforms can be spaces for pushing the boundaries of being normal.
This Medea Vox episode is accompanied by the book chapter “CHARGE on: Digital Parenting of a Child with Rare Genetic Syndrome with the Help of Facebook Group” (open access).
See also Pruulmann-Vengerfeldt’s lecture Digital parenting: How Social Media Helps Push the Boundaries of Being Normal which was part of Malmö University’s public lectures series Inside the Mind of a Professor.
The above book chapter, “CHARGE on …”, is published in the Nordicom book Digital Parenting: The Challenges for Families in the Digital Age.